rare diseases | Nonprofit

People with rare diseases call for recognition and visibility within the UN system

News
Juan Carrión: “Care-giving for people with rare diseases has been interrupted in 91% of cases”

Interview
RareConnect, a meeting point for people living with rare diseases

News
Àlex Roca: "It’s not right that all the healthcare responsibility should fall on the parents of small children"

Interview
Flaminia Macchia: “Rare diseases are often ignored by public policies, the journey towards full inclusion is long”

Interview
Non-profit organizations and rare diseases

Opinion